In 2013, to fulfill the requirements of my doctoral degree, I surveyed disability service professionals at 578 degree-granting, four-year public institutions of higher education. The survey was designed to determine the current readiness of higher education to support the academic, social and communication, and independent living needs of college students diagnosed with Asperger’s Disorder. 230 colleges participated in the survey.

The survey was designed around the Benchmarks of Effective Supports for College Students with Asperger’s Disorder, a checklist of efforts determined by experts as integral to effective college supports for this student population.

The 2012 study demonstrated college students with Asperger’s Disorder required specialized supports, and that disability services available traditionally on campus to this population were generally ineffective. The 2013 nation-wide survey explored, in part, whether or not colleges had specialized supports for this student population outside of traditional disability services.

The first research question addressed academic supports, and asked:

“What is the current state of readiness within higher education to meet the academic needs of college students with Asperger’s Disorder as described in the Benchmarks of Effective Supports for College Students with Asperger’s Disorder?

The areas of support investigated and the results of the survey follow:

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What parenting styles work for you? Are we emotionally stunting our own children? Greetings, my name is Raeme Bosquez-Greer. I am a Program Director with Southwind Fields and I am a mother of adopted children who have cognitive disabilities. The subject I will be discussing is from the perspective of a mother who has been there and done that, then did it again.

For many years I have spoken to parents from all walks of life that have an array of parenting styles. The dynamics of relationships in a household molds the emotional balance of your child.

Regarding a person with Autism, this statement is intensified because I believe these youths on the spectrum feel more and absorb more than any other human being. This is often shown when observing social skills with a group of strangers, grocery shopping, attempting to live with a roommate and so much more.

I will admit I am everything rolled into one in regard to being a Lawn Mower Mom, and A Helicopter Mom. I hover, and I over protect. As a professional and advocate I have seen too much to not be these types of mothers.

It is very difficult currently to not be overprotective and wanting to insulate our children in a safe bubble.

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When a child with Aspergers or High-Functioning Autism demonstrates challenging behaviors, we tend to blame the child’s autism. However, these challenging behaviors are not a byproduct of autism, rather learned due to ineffective means to get needs met—especially when there are barriers to communication.

functions of behavior

Bottom line: if an individual does not have a way to communicate appropriately, he or she will find a way to communicate in another way (e.g. screaming or hitting).

Keeping in mind the ABCs of behavior from our previous post, let’s discuss the key to changing behavior.

Behavior is changed when we know the function—or purpose—of the behavior.

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Challenging Behaviors and Appropriate Skills in ABA

As I mentioned in my previous blog, there are thousands of published research studies to support the effectiveness of ABA in treating autism and Aspergers. Specifically, ABA seeks to decrease challenging behaviors and increase appropriate skills that are seen in many individuals with autism or Aspergers.

Challenging Behaviors and Appropriate Skills in ABA

To help understand what your ABA therapist seeks to accomplish, let’s cover what these terms mean:

Challenging Behaviors

Challenging behaviors refer to those behaviors that put the individual in danger, put others around them in danger, or prohibit/limit a person’s use and access to community facilities (Emerson et al., 1987).

Let’s say a 12-year old with high functioning autism, “Jake,” told his overweight teacher that she is fat. The teacher, who was very insulted by the comment and the conversation that followed, sent him to the principal’s office for bad behavior.

From Jake’s perspective, he didn’t understand why he was in trouble for telling the truth. If Jake engages in these types of behaviors regularly, he may soon be unable to access his general education classroom.

As such, this behavior is considered a challenging one that an ABA therapist can help address.

Appropriate Skills

On the other hand, appropriate skills refer to skills that a person needs to be successful. Those skills take into account the person’s chronological age and their cognitive level of functioning.

Appropriate skills include the following:Continue Reading

Social Communication Disorder is marked by difficulties with pragmatics—aka practical everyday use—or the social use of language and communication. Therefore, SCD is concerned with an individual’s use of verbal and nonverbal social communication in everyday life.

The condition is of particular interest to individuals with Aspergers or HFA.

In the DSM-V, it specifically states that individuals who have marked deficits in social communication but whose symptoms do not otherwise meet the criteria for autism spectrum disorder (ASD) should be evaluated for social (pragmatic) communication disorder.

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Do you have a place in your life that you retreat to when you are feeling the stressors of the world come down on you? For some, it might be as simple as your home. For others, it might be in a specific location such as sitting on a bench by the garden, or soaking in the bath tub with some soothing bubbles and lit lavender candles.

Cute kids

Wherever your “chill zone” is, you are rejuvenated when you emerge and are better equipped to deal with the next stressful challenges that are sure to come. After all, life and stress go hand in hand. It is how one deals with that stress that contributes to their success each day.

Understanding that individuals with Asperger’s experience ongoing stress as a result of neurological differences, the “chill zone” can serve as an effective coping mechanism.

The National Institute of Neurological Disorders and Strokes has clearly identified that the brain is truly wired differently in ways that are extremely complex. “Using advanced brain imaging techniques, scientists have revealed structural and functional differences in specific regions of the brains of children who have Asperger syndrome versus those who do not have the disorder.”

Read  more about this here: http://www.ninds.nih.gov/disorders/asperger/detail_asperger.htm

While most neuro-typical individuals can retreat to their “chill zone” on an as-needed basis, individuals with Asperger’s may need more overt planning to identify an effective “chill zone” and an effective strategy on how to access that location and when.

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When you raise children on the spectrum (and with other challenges) life is full of unknowns and uncertainties. Our son, Daniel, was not officially diagnosed until the 5th grade. We knew the way he reacted to situations and approached learning in school was not typical. Every year, as he moved through Elementary School, I would talk with the teacher about his differences.

I tried to make the teacher aware of his challenges and offer my support. The teachers were generally dismissive – I always had the feeling that they felt I was being too protective and was over involved; a helicopter parent.

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Many diseases during our lifetime have been, if not eradicated completely, at least greatly minimized. These include smallpox and polio, among others. But will there ever be a cure for Asperger Syndrome? For that matter, does there need to be?

school icons on the blackboard

Remember that A.S. isn’t a defect so much as a difference: That is, the Aspy brain is wired somewhat differently than that of the so-called “neurotypical.”

While those differences do cause problems in a neuro-typical world at times, they can also be very beneficial if channeled and directed properly. For example, Einstein probably had A.S., but in spite of, or perhaps because of that, he went on to fill his resume with accomplishments that would give anyone cause for envy. Would you say he needs to be “cured”?
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As a person with Autism and having suffered tremendous amounts of abuse as a child, I believe that it is vital for the Autism community to understand how to deal with these issues. Being diagnosed with many disabilities along with Autism, I lived a childhood of often being rejected and treated differently. Having Autism and being non-verbal, I never told anyone about the trauma I went through because I felt no one would believe me or it may increase the abuse.

There are ways that the Autism community and supporters can be aware of possible abuses to advocate for those that cannot speak for themselves. Educators, family members, friends, and medical professionals should be keenly aware of the signs of abuse in those with Autism. There are also many ways that those who have suffered abuses can learn to heal and protect themselves. In this blog I outline the signs and results of abuses, as well as ways that those who have experienced abuse can rehabilitate.Continue Reading

In a previous blog I told the story of how it felt when my young daughter with Autism disappeared. Today I want to present a continuance of that very important subject and some related subjects.

Elopement

For any parent, the fear of their child wandering off is intense due to the obvious dangers that face a helpless child on his own in the cold cruel world. It is even more so for the parent living with a child with Autism. Children with Autism sometimes have the propensity to wander, but the protocol for locating them needs to be handled with specialized methods and care. These methods may vary greatly than those of a child without Autism.

Happy Jesse

The experience can be, not unlike that of a parent of neuro-typical child who may have wandered off, deeply distressing with the impeding thought of harm coming to their child. It can also be exasperating when law enforcement responds to the parent in ways that are not so empathetic to the parent’s situation. Thus making the event even more stressful. I will share a story now: but try to remember that a parent of an Autistic child already has deep imbedded feelings over the safety of their children going in to overcome the following scenario.Continue Reading

Lessons Learned From the Kids with Diverse Abilities:

I say diverse abilities because one thing that I have learned from working and playing with children and adults with developmental disabilities is that they understand more than neuro-typical children and adults do. You may understand if you’ve ever heard the phrase “Dance like no one is watching,” and if you crave the freedom and joy that behaving that way can bring.

Silhouette, group of happy children playing on meadow, sunset, summertime

They live their lives like no one is watching. They may not even have the ability to sensor their thoughts. This really brings a sense of freedom and joy that no one else (I know) can truly understand. It is the rest of the world who has a problem with what a child like this does and says. If society could be “okay” with this, than they could be “okay” with truly BEING authentic with who they are. These children taught me so much about being authentic and not worrying about what other people see or think. It was years later, when I became a mother again, that I realized just how much they taught me.Continue Reading

autalkz_ii___008___masks_by_mdchan-d9gsyc6

This comic actually touches upon two things (though, I hadn’t intended to do that). My main point is the “mask” we put up, and then I realized that it also lightly touches upon taking things/expressions literally.

On the shorter note, people on the spectrum have difficulties distinguishing between normal tones and sarcasm. There’s also trouble understanding expressions (like “two birds with one stone”), allegories, and metaphors. When I first heard the expression “apple of my eye”, I pictured someone’s eyes reflecting apples, for example.

When I had to read stories in high school on allegory and symbolism, it all went over my head. “Watership Down” is one of my favorite novels, but I still don’t pick up on the symbolism which is apparently in the novel. I’ll explain all that in further detail when I do a comic which actually delves more into the subject. The main subject I was trying to explain with this comic is autism vs society.Continue Reading