Many say that Asperger’s isn’t a disability, it’s a different ability and I completely agree. We all know that children and adults with Asperger’s bring so many unique gifts to the table. With that said, it is important as a parent that you understand and truly believe that statement. You need to take that thought and hold onto it because as a parent trying to help your child navigate this world, it isn’t always going to feel that way.
It is our job and right as parents to worry in general, but during times of struggle it elevates a little, okay a lot, and your worries and fears stretch far beyond the soccer field. The game plan, the therapies, and the progress are all part of your life too. The struggle lies in the fact that the plan will need to change, that was once right no longer will be. Just as you think you are smooth sailing, a small change in life may cause the need to reset everything.
Many people see children with Asperger’s and they don’t understand that their needs are lifelong. They don’t see that even if you watch your child succeed at a young age, there will be new territory to navigate as they get older and new situations arise. Of course every child is different, heck every person is, but there is a big underlying root of anxiety, fear, and discomfort for those living the Aspie life.
Perhaps that doesn’t make you feel any better and might even scare you more. I’m sorry if that’s the case, but I truly believe it is important to acknowledge all of the feelings and territory that come with the job. This is a job that comes with a lot of hard work, confusion, sadness, worry, and readjusting. There are going to be days when it doesn’t feel like “a different ability” for you or your child and you need to allow yourself to feel that.
You need to hear and find others who know the guilt that you may sometimes feel when you doubt yourself.
There is a guilt that you feel when you are sad for your child during times of struggle, and when deep down inside you wish that struggle wasn’t there. You will have people tell you that all children struggle, which they do, but it won’t help or bring you any comfort. There are days that you will just feel lost and you will cry.
No matter what happens in life, one thing will always remain true. You will find a way to help your child and come up with a new plan to address life’s new obstacles. You will always rediscover your footing and help them do the same. You will always love and adore your son or daughter and you will never stop fighting for them.
While some days or time periods may scare you or even bring doubt, you will always once again feel that Asperger’s is simply a different ability, and those are the moments that are going to carry you through.
So even if you don’t feel it at the time, always carry that thought with you because I promise that the storm will pass and once it does you are always going to need the reassurance! It may be a wild ride, but the times that you get to celebrate that extra “ability” and triumph are what makes it all worthwhile.
By Jessica Nieminski
Jessica joins aspergers101 team of writers as a single mother of two extraordinary children who believes that all children deserve the love and acceptance that they give out. Follow Jessica in the Family section of aspergers101 and share in her personal stories as she will cry and laugh her way through life. Jessica blogs regularly on her site, My Extraordinary Child, a place where parenting is discussed, tears and sarcasm come to meet, and differences are celebrated. “Unless the world stops limiting opportunities for people of all abilities, I never will. Join me on a journey of tears, laughter, and courage”. -Jessica Nieminski