Q: “Many people see children with Asperger’s and they don’t understand that their needs are lifelong. They don’t see that even if you watch your child succeed at a young age, there will be new territory to navigate as they get older and new situations arise.” This is so true, my son was diagnosed with Aspergers in the 90’s when there was not a lot of “buzz” about it. He did okay, but now as an adult he seems to be having difficulty especially with anxiety and confidence. I am worried for him, and keep directing him towards counseling, but he hasn’t yet. Any suggestions?

-Angela

adulthood

Angela,

I can completely relate to this. Near the end of my high school days, I garnered several accomplishments and awards, but college was a completely different ballgame, especially since I was four hours away from home. Once I got out of college and moved back home, the working world was a completely different situation as well, and I struggled mightily at times. Each new job, new relationship, and new situation is a challenge, but an opportunity as well. Fortunately, my family could not have been more supportive of me over the years.Continue Reading

I was standing in the post office shipping off a package when I got a burst of inspiration to take this funny picture. It uses humor to describes some of the challenges people with developmental disabilities face but it also helps me vent my frustration and address a wider issue.
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First day of school. College interviews. Job interviews.

It seems like the most important encounters that determine the quality of our life are also the most superficial. So much could go wrong in the first impression.
  • One girl I had just met told me that she thought my body language was condescending.
    • My rationalization: First off what does condescending body language even look like? I googled it because I was so perplexed and turns out condescending can only apply to language. I think she was trying to say defensive or standoffish.
  • A man who had just met and conversed with me briefly once told me that my use of vocabulary words like “tantalizing” and “perturbed” in everyday conversation makes him think I am keeping people at a distance.
    • My rationalization: I am always happy to explain things in a different way in order to clarify what I’m talking about but in this case, they did not give me the chance to clarify my idea. He just made an assumption on my intentions of using “big words” and technical terms when in actuality that is how I talk.

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Artist, Writer, Director and college student Dwayne Dixon possess the talents of many diagnosed with Aspergers. Though Dwayne does not have Aspergers, he is a strong example of utilizing what talents/intense interests you do have into a passionate living! He and his production team from New York are always on the scout for voice talent (see contact info at end of blog) and recently enlisted Sam (my son with Asperger Syndrome) for a part in a working program titled: Kuro ni Fedo. We caught up with Dwayne during his hectic schedule to ask some questions about VSW Productions, his aspirations and his advice for those on the spectrum.

Brief Background: VSW (Vendetta Spying Wolf) Productions is a non-profit production crew made up of college students who have an interest in voice acting, animation, etc. The latest project is a series titled Kuro ni Fedo. We caught up with VSW owner Dwayne Dixon to learn more of the behind- the- scenes makings in his fan fiction animation.

Aspergers101:  Hello Dwayne and welcome to the Aspergers101 Community! Tell us about your talents and how you pooled them with some of your New York college friends to form VSW Productions.

Dwayne Dixon: Hello to you too and thank you for having me. To begin answering that I must first rewind the clock a little. When I was younger I would always draw characters from certain cartoons that I enjoyed. I’ve been given compliments in response to my art. It made me feel good so I kept practicing. Honing my skills I’ve meet up with my co-writer/best friend from High School and due to having common interest we decided to write the story to Kuro ni Fedo; which stands for Fade to Black in Japanese.

Aspergers101: What kind of projects are VSW Productions currently working on?

Dwayne Dixon: Still early to the whole Production aspect we don’t have a lot of projects out yet but we’re mostly working on Kuro ni Fedo since the illustrations and the voice work takes the longest of our time. But I also have another project in mind that could possibly be a live action short film that will even involve those that aren’t close by. Such as those who voice outside of the state of New York. VSW Productions doesn’t try to leave anyone out.

Aspergers101: Who writes the copy, produces the music, illustrates and edits for Kuro ni Fedo?

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Remember Ellie Mae on “The Beverly Hillbillies?” She was portrayed by Donna Douglas, in her day considered one of the most beautiful women on television. But she also once played a character who wasn’t so beautiful.

In an episode of “The Twilight Zone” titled, “Eye of the Beholder,” Douglas portrayed a woman who was so ugly, she underwent an operation to make her less so. The suspense was built up by the fact that we never saw her face until the bandages around them were removed. When they were removed, they revealed her to be the strikingly beautiful woman she was, but the doctor recoiled in horror and said, “No change, no change at all.”

At that point, we saw the faces of the doctors and nurses around her, which were all distorted and misshapen in grotesque fashion. In the end, she’s sent to live in a colony with similarly “ugly” people, and accompanied by a handsome male escort.

She asks him, “Why are some of us born so ugly?”

Obviously, her character was not inherently ugly, but she was simply born in the wrong world. That’s a dilemma similar to that which the Aspie faces.Continue Reading

First, let’s have sensory processing disorder explained by someone with a personal experience with it. Watch this video of Amythest Schaber, a person living with an autism spectrum disorder.

Differences in auditory processing are one of the more commonly reported sensory processing impairments. In one chart review of developmental patterns in 200 cases with autism 100% of the participants demonstrated difficulties with auditory responding.Continue Reading

When I was diagnosed with Aspergers, my parents enrolled me in 48 hours a week of social skills and coping mechanism training. That was 10 years ago. These are 23 friendly suggestions I still find to be true and carry with me today.

Alix Generous
Alix Generous

My 23 Truths

  1. Never follow advice that you intend to carry out by hurting another living being.
  2. Find what you love and pursue it even if it means working twice as hard in other areas of your life in order to do so. It can be one thing or it can be many. Obsessions and interests can lead to successful careers. Additionally, if you’re interested in a task you’ll do better at it.
  3. Following blind happiness is a better decision than choosing certain unhappiness, as long as you apply appropriate practical skills and common sense (which can be learned in a Google search). No matter where you are and what situation you may be in, this isn’t your parent’s, boss, or teacher’s life, it’s your own. With the accumulation of knowledge and self discovery you can make choices that will shape the life you want. If you want to be a scientist, do what you need to in order to make that happen. That path is not exactly linear, you might have to do things differently than others, but that doesn’t make it bad or wrong to pursue. I had an incredible amount of difficulty socially when I started college in Charleston, SC. It was the weirdest feeling because I had wonderful friends there as well as great education and academic support. It never made sense why I was unhappy there but the moment I moved up to Boston 2 years ago, the unhappiness slipped away. Against the advice of my family, I drove to Boston, found an apartment, and an internship in one weekend, and met the love of my life. This move was all based on the feeling that Boston was the place I needed to be. I fit in well because I could talk to people about quantum physics and current issues, and have people eagerly teach me more than I could possibly understand, rather than think I’m weird.
  4. If one way doesn’t work, don’t linger on the frustration of a broken road. Find a better way.
  5. Study with people who are smarter than you and sit next to the nicest person in class.
  6. A great idea implemented in an effective way will always trump prestige and superficial qualities that seem out of reach for those on the spectrum. Your mind is an asset, and if you use it properly without shame or pride, you can change the world.
  7. The best way to figure out whether someone is manipulating you or helping you is to ask yourself: Do they want something from me? People can only manipulate you if you have something they want. Special educators sometimes neglect the needs of high-functioning autism in order to retain disability funds.
  8. Finding who you are is a continuous journey, not a specific event that happens. It frustrates me how adolescence is deemed a time of searching for identity, because it implies that becoming an adult means you know every aspect of who you are. That’s a bunch of Bologna. I’ve met people of all ages who vary in behavioral patterns and world views. Accept, understand, and utilize your strengths as they are at this moment, and use a growth mindset to improve yourself.
  9. The easiest way to interact with someone who thinks and feel differently then you do is to ask them questions.
  10. In a debate, argument, or conflict, always validate the opposing persons view before stating your own view.
  11. When in doubt, Google. When googling, question the reliability and truth of everything. Look at the people who make claims, and ask yourself if they have a sufficient amount of knowledge to make such a claim. The more proactive you are in your education, the less you have to rely on others for answers. You can find all laws, licenses, addresses, and criminal records within a simple click. This is something you should do in regards to everyone involved in providing accommodations for you such as counselors, doctors, and tutors.
  12. Social media is not a substitute for in person interaction. Social skills like table manners or looking someone in the eye when you shake their hand are invaluable.
  13. Don’t take advice from hypocrites. For example, don’t take relationship and marriage advice from someone whose had 3 marriages end in divorce.
  14. Vaccines do not cause autism. This study was published by a scientist who was jaded by his funding sources, and falsified his data in order to get published. The journal that published his research revoked the paper, and denounced its validity after learning the truth of his research methods.
  15. Firm and non-flexible opinions stunt intellectual growth and stifle your own truth. Research all sides of one issue before deciding for yourself.
  16. Make choices that bring you closer to your goals, not based simply on what you feel. Mastering this habit will help you overcome lethargy, anhedonia, and other symptoms of depression and social anxiety associated with Aspergers.
  17. People are just people. No matter what it may seem, the most seemingly superficial or flawless of individuals have imperfections and insecurities. The success of a person is determined by how they deal with their imperfections and insecurities, not the existence of them. Everyone has their weaknesses, some people are just better at hiding it than others.
  18. The energy you put in will be returned to you. Say positive things to yourself and surround yourself with positive people even if you don’t feel it, because it will make your surroundings positive and supportive to who you are. You might have to boot out some psycho family members or close friends if they are creating more negative emotions than positive, but trust me it’s worth it. Be brave, set those boundaries so you and others can be inspired to improve.
  19. The easiest way to affect an individual’s first impression of you is with make up, hair, clothes,and body posture. Changing facial expression, tone, and word choice take a lot more work. Hair and makeup never came naturally to me and I didn’t start learning how to use them until I went to college. Pinterest has lots of simple tutorials. Because of sensory issues, I only wear makeup for special events.
  20. People are not divided into two categories of “weird” and “normal”. Everyone exists on a spectrum.
  21. Go out of your way to figure out what aspects of yourself you can improve on, and which ones you can’t. Love every part of yourself either way.
  22. There is never any need to be mean. Being nice does not equate to being a pushover and you can always present constructive criticism in a respectful manner.
  23. Keep firm boundaries in the work place. Your personal and private life are better left separate. If you don’t believe me, try bringing up your aunt’s kidney stone as a casual conversation and tell me how it goes.

I send all my love and support to all of you reading this post.
-Alix

If you are a High Functioning Autistic (HFA), the odds are troublingly high that you also suffer from some form of depression. As someone who suffers from depression myself, I’ve spent a great deal of time thinking about how to find happiness when you struggle with the burdens of having an autistic brain. One possibility for the prevalence of depression in autistic brains is that HFAs, for reasons distinct to their neurological condition, are innately more likely to feel depressed.

My sense, though, is that we tend to be depressed because life is difficult for us in ways that are somewhat different from the experiences of the Neurologically Typical (a satirical term for non-HFAs). As such, any discussion of why HFAs tend to be depressed must be approached as a social justice issue, with a clear statement of ethical axioms that, if followed, would help HFAs and non-HFAs alike.Continue Reading

social skills, aspergers, personal space

Q: Could you go into detail on other types of relationships (friends, co-workers, acquaintances, etc.) that you have had? Do you have a specific example of a misstep? Or situation that you were able to handle because of something you had been taught?

social skills, aspergers, personal space

A: Years ago, I was asked to help lead songs for a college-age Bible study (I was 30). Eventually, some of the women in the group went to the leader and told him they were uncomfortable with the way I looked at them. I was asked not to come back. I was in complete shock, and kept trying to figure out where I went wrong.

A little over a year later, I overheard a co-worker make a similar complaint about me (she was on her phone and didn’t realize how loud she was).

It was then that I realized I did indeed have a problem with staring, and didn’t even know when I was doing it.

I worked with a counselor who taught me techniques on giving people space, and how to give people a break from my eye contact. He taught me things about body language that I had never thought of before. I put these learned techniques into practice in subsequent social situations.

I learned to closely monitor how long I looked at someone, and how much personal space I was giving them. These things were extremely beneficial to my interaction with others, and I’m sure made others more comfortable around me.

There’s no comparison. I used to compare myself to everyone around me, and they always came out better. Is the grass really greener?

by Ken Kellam

For much of my life, I have had a hard time understanding not only the non-verbal communication of others, but how my own non-verbal communication affected others. Sometimes, if I was irritated at someone, I would simply keep my mouth shut, the rationale being “They can’t hold me accountable for something I didn’t say.”

What I failed to realize was that sometimes silence speaks louder than anything you could say, or that you could say one thing, but your facial expressions, actions, and certainly body language tell the real story.Continue Reading

Many diseases during our lifetime have been, if not eradicated completely, at least greatly minimized. These include smallpox and polio, among others. But will there ever be a cure for Asperger Syndrome? For that matter, does there need to be?

school icons on the blackboard

Remember that A.S. isn’t a defect so much as a difference: That is, the Aspy brain is wired somewhat differently than that of the so-called “neurotypical.”

While those differences do cause problems in a neuro-typical world at times, they can also be very beneficial if channeled and directed properly. For example, Einstein probably had A.S., but in spite of, or perhaps because of that, he went on to fill his resume with accomplishments that would give anyone cause for envy. Would you say he needs to be “cured”?
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autalkz_ii___008___masks_by_mdchan-d9gsyc6

This comic actually touches upon two things (though, I hadn’t intended to do that). My main point is the “mask” we put up, and then I realized that it also lightly touches upon taking things/expressions literally.

On the shorter note, people on the spectrum have difficulties distinguishing between normal tones and sarcasm. There’s also trouble understanding expressions (like “two birds with one stone”), allegories, and metaphors. When I first heard the expression “apple of my eye”, I pictured someone’s eyes reflecting apples, for example.

When I had to read stories in high school on allegory and symbolism, it all went over my head. “Watership Down” is one of my favorite novels, but I still don’t pick up on the symbolism which is apparently in the novel. I’ll explain all that in further detail when I do a comic which actually delves more into the subject. The main subject I was trying to explain with this comic is autism vs society.Continue Reading

Autism, Asperger's

He was born in Austria in 1906. As a child, making friends didn’t come easily and he was considered lonely and remote, but he was talented in language. In particular he had an interest in poetry.

Autism, Asperger's

He was known to quote his favorite Austrian poet to classmates—not that they were interested. He also quoted himself, and sometimes referred to himself in the third-person. He displayed characteristics of the condition that would one day bear his name.Continue Reading