Transitioning to Adulthood with Aspergers

Individuals diagnosed with Aspergers or another autism spectrum disorder (ASD) may be presented with many challenges throughout their lives—especially during the transitional periods. As the individuals age and learn to use different skills in various environments, families, educators, medical professionals and the individuals themselves begin to anticipate the transition to adolescence and, eventually, to adulthood. Given the differences in abilities and behaviors that many individuals with Aspergers or HFA experience, it can often be overwhelming to plan for tomorrow much less several years later.

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Among the many skills that an individual must learn to successfully transition to adolescence and adulthood, daily living skills are often neglected.

Examples of daily living skills are bathing, grooming, preparing meals, managing finances, using public transportation, etc. These daily skills are necessary for independent functioning in the home and within the community.

A recent study discovered that individuals with ASD improved in daily living skills during adolescence and the early twenties. These skills plateaued around late twenties and began to decline in the early thirties—this shows the importance of honing these skills earlier in life instead of waiting until later.

Some positive findings were that inclusive schooling had a positive influence on adult outcomes. The study also found, “that vocational independence predicts improvements in autism symptoms and significant improvements in behavioral problems.” Daily living skills could also be increased by engaging in some type of work activity.

It is encouraging that daily living skills can continue to be gained at later points in development as other skills plateau. The authors suggest that more research is needed to develop behavioral and pharmacological interventions for older individuals on the autism spectrum.

While individuals with Aspergers or HFA may have challenges with the daily living skills necessary for transitional periods, it is important for their independence and quality of life to begin this journey at an early age to ensure success.

by Lupe Castañeda, M.S., BCBA

Have you thought about or experienced the transitional periods in your or your child’s life?

How did you cope with these experiences? 

Sources:

Smith L.E, Maenner, M.J. & Seltzer, M. (2012). Developmental Trajectories in Adolescents and Adults with Autism: The Case of Daily Living Skills. Journal of American Academy of Child and Adolescent Psychiatry.  51(6): 622–631.

Concerns About Solitary Sons with Aspergers

My son, now 30yrs old has had difficulties since childhood, and we know he has Aspergers. During his teens he was extremely angry and sad but he came through this period. Today he lives independently, has his own home and car but for the past year he has not spoken at all to anyone. His life is restricted to his job, which is in jeopardy because of his refusal to speak to his co-workers. He was visiting me on Sunday but now that has ended. He literally speaks less than a “Yes” or “No” to anyone. We have been to social service, doctors, clinicians, speech therapists, psychologists, and he refuses to see any of them. Everything I read online is about children. Any advice?

-Doug

Perspective

Temple Grandin Explains: Choosing the Right Job for People with ASD

Jobs need to be chosen that make use of the strengths of people with Autism or Asperger’s syndrome. Both high and low functioning people have very poor short-term working memory, but they often have a better long-term memory than most neurotypicals. I have great difficulty with tasks that put high demands on short-term working memory. I cannot handle multiple tasks at the same time.

employment, jobs

Table 1 is a list of BAD jobs that I would have great difficulty doing.

Table 2 is a list of easy jobs for a visual thinker like me.

I have difficulty doing abstract math such as algebra and most of the jobs on Table 2 do not require complex math. Many of the visual thinking jobs would also be good for people with dyslexia.

The visual thinking jobs on Table 2 put very little demand on fast processing of information in short-term working memory. They would fully utilize my visual thinking and large long-term memory. Table 3 is a list of jobs that non-visual thinkers who are good with numbers, facts and music could do easily.

They also put low demands on short-term working memory and utilize an excellent long-term memory. Table 4 shows jobs that lower functioning people with autism could do well. For all types of autism and Asperger’s syndrome, demands on short-term working memory must be kept low. If I were a computer, I would have a huge hard drive that could hold 10 times as much information as an ordinary computer but my processor chip would be small.

To use 1999 computer terminology, I have a 1000 gigabyte hard drive and a little 286 processor. Neurotypicals may have only 10 gigabytes of disc space on their hard drive and a Pentium for a processor. I cannot do two or three things at once.

Some job tips for people with Autism or Asperger’s syndrome:

  • Jobs should have a well-defined goal or endpoint.
  • Sell your work, not your personality. Make a portfolio of your work.
  • The boss must recognize your social limitations.

It is important that high functioning autistics and Asperger’s syndrome people pick a college major in an area where they can get jobs. Computer science is a good choice because it is very likely that many of the best programmers have either Asperger’s syndrome or some of its traits. Other good majors are: accounting, engineering, library science, and art with an emphasis on commercial art and drafting. One could major in library science with a minor in history, but the library science degree makes it easier to get a good job.

Some individuals, while they are still in high school, should be encouraged to take courses at a local college in drafting, computer programming or commercial art. This will help keep them motivated and serve as a refuge from teasing.

Families with low income may be wondering how they can afford computers for their child to learn programming or computer aided drafting. Used computers can often be obtained for free or at a very low cost when a business or an engineering company upgrades their equipment.

Many people do not realize that there are many usable older computers sitting in storerooms at schools, banks, factories and other businesses. It will not be the latest new thing, but it is more than adequate for a student to learn on.

In conclusion: a person with Asperger’s syndrome or autism has to compensate for poor social skills by making themselves so good in a specialized field that people will be willing to “buy” their skill even though social skills are poor.

This is why making a portfolio of your work is so important. You need to learn a few social survival skills, but you will make friends at work by sharing your shared interest with the other people who work in your specialty. My social life is almost all work related. I am friends with people I do interesting work with.


Table 1

Bad Jobs for People with High Functioning Autism or Asperger’s Syndrome: Jobs that require high demands on short-term working memory

  • Cashier — making change quickly puts too much demand on short-term working memory
  • Short order cook — Have to keep track of many orders and cook many different things at the same time
  • Waitress — Especially difficult if have to keep track of many different tables
  • Casino dealer — Too many things to keep track of
  • Taxi dispatcher — Too many things to keep track of
  • Taking oral dictation — Difficult due to auditory processing problems
  • Airline ticket agent — Deal with angry people when flights are cancelled
  • Future market trader — Totally impossible
  • Air traffic controller — Information overload and stress
  • Receptionist and telephone operator — Would have problems when the switch board got busy

Table 2

Good Jobs for Visual Thinkers

  • Computer programming — Wide-open field with many jobs available especially in industrial automation, software design, business computers, communications and network systems
  • Drafting — Engineering drawings and computer aided drafting. This job can offer many opportunities. Drafting is an excellent portal of entry for many interesting technical jobs. I know people who started out at a company doing drafting and then moved into designing and laying out entire factories. To become really skilled at drafting, one needs to learn how to draw by hand first. I have observed that most of the people who draw beautiful drawings on a computer learned to draw by hand first. People who never learn to draw by hand first tend to leave important details out of their drawings.
  • Commercial art — Advertising and magazine layout can be done as freelance work
  • Photography — Still and video, TV cameraman can be done as freelance work
  • Equipment designing — Many industries, often a person starts as a draftsman and then moves into designing factory equipment
  • Animal trainer or veterinary technician — Dog obedience trainer, behavior problem consultant
  • Automobile mechanic — Can visualize how the entire car works
  • Computer-troubleshooter and repair — Can visualize problems in computers and networks
  • Small appliance and lawnmower repair — Can make a nice local business
  • Handcrafts of many different types such as wood carving, jewelry making, ceramics, etc.
  • Laboratory technician — Who modifies and builds specialized lab equipment
  • Web page design — Find a good niche market can be done as freelance work
  • Building trades — Carpenter or welder. These jobs make good use of visual skills but some people will not be able to do them well due to motor and coordination problems.
  • Video game designer — Stay out of this field. Jobs are scarce and the field is overcrowded. There are many more jobs in industrial, communications business and software design computer programming. Another bad thing about this job is exposure to violent images.
  • Computer animation — Visual thinkers would be very good at this field, but there is more competition in this field than in business or industrial computer programming. Businesses are recruiting immigrants from overseas because there is a shortage of good programmers in business and industrial fields.
  • Building maintenance — Fixes broken pipes, windows and other things in an apartment complex, hotel or office building
  • Factory maintenance — Repairs and fixes factory equipment

Table 3

Good Jobs for Non-Visual Thinkers: Those who are good at math, music or facts

  • Accounting — Get very good in a specialized field such as income taxes
  • Library science — reference librarian. Help people find information in the library or on the Internet.
  • Computer programming — Less visual types can be done as freelance work
  • Engineering — Electrical, electronic and chemical engineering
  • Journalist — Very accurate facts, can be done as freelance
  • Copy editor — Corrects manuscripts. Many people freelance for larger publishers
  • Taxi driver — Knows where every street is
  • Inventory control — Keeps track of merchandise stocked in a store
  • Tuning pianos and other musical instruments, can be done as freelance work
  • Laboratory technician — Running laboratory equipment
  • Bank Teller — Very accurate money counting, much less demand on short-term working memory than a busy cashier who mostly makes change quickly
  • Clerk and filing jobs — knows where every file is
  • Telemarketing — Get to repeat the same thing over and over, selling on the telephone. Noisy environment may be a problem. Telephone sales avoids many social problems.
  • Statistician — Work in many different fields such as research, census bureau, industrial quality control, U.S. Dept. of Agriculture, etc.
  • Physicist or mathematician — There are very few jobs in these fields. Only the very brilliant can get and keep jobs. Jobs are much more plentiful in computer programming and accounting.

Table 4

Good Jobs for Nonverbal People with Autism or People with Poor Verbal Skills

  • Reshelving library books — Can memorize the entire numbering system and shelf locations
  • Factory assembly work — Especially if the environment is quiet
  • Copy shop — Running photocopies. Printing jobs should be lined up by somebody else
  • Janitor jobs — Cleaning floors, toilets, windows and offices
  • Restocking shelves — In many types of stores
  • Recycling plant — Sorting jobs
  • Warehouse — Loading trucks, stacking boxes
  • Lawn and garden work — Mowing lawns and landscaping work
  • Data entry — If the person has fine motor problems, this would be a bad job
  • Fast food restaurant — Cleaning and cooking jobs with little demand on short-term memory
  • Plant care — Water plants in a large office building

Temple Grandin, Ph.D.
Assistant Professor
Colorado State University
Fort Collins, CO 80523, USA
(November, 1999)

This article was written in 1999 by the Assistant Professor at Colorado State University Dr. Temple Grandin. It is still very relevant today as it applies to job seekers who are on the autism spectrum. As published at: Indiana Institute on Disability and Community 

Running a Spartan Race with Asperger’s

(Repost)

Thirty-six year old Justin Coleman is a runner. It just so happens he was diagnosed with Asperger’s Syndrome in 2013. He is a long-time contributing member of the San Antonio Area Adults with Asperger’s Meetup group.

Recently, Justin competed in the Spartan Dallas Ultra. This race had over 60 obstacles and was over 31 miles long.  There were thousands of participants from all over the world. Justin feels that he made history for autistic people by finishing and receiving a buckle trophy.

Justin runs in several races a year, both obstacle type races and regular ultra marathons. Costumes are often a part of the specialty races. His Facebook friends are treated to frequent pictures of Justin and his running buddies. He has a grueling workout schedule to maintain his conditioning, plus he works for Amazon and will be re-entering a college program at Northeast Lakeview in San Antonio this spring.

In 2016 Justin even started traveling out of state to races. Congratulations, Justin, for all your achievements.

Here are Justin’s own words about his running and obstacle course passion:

My name is Justin and I became the first man with Asperger’s to not only run an ultramarathon but it was actually a race called a Spartan ultra (used to be called the ‘ultra beast’).

To put the whole idea in elementary terms, for a regular ‘beast’ race you have a minimum of 13 miles with at least 30 obstacles that an individual has to overcome, whether it’s climbing over a wall, crawling under a barbwire with the ground being either grass or a mix of mud with water, or even pulling up a sandbag using a pulley system.

Now imagine having to do 2 laps of this race. This was my very first time doing an ultra race of any form. Unfortunately, this isn’t just a ‘walk in the park’, as with this race there is a time limit that you HAVE to complete the race by.

For Drivers with ASD A Visual Checklist for Complete Vehicle Maintenance

The importance of understanding how to maintain your car

Drivers with ASD, especially those who have little experience, often neglect to learn about vehicle maintenance. They do not receive car maintenance information in driver’s education courses and may feel persuaded to initially think that it does not matter.

Car Speedometer Symbols

Unfortunately, when lights come on in their cars or if their cars unexpectedly die on them, they may become confused as to how to deal with such situations. Parents must educate their driving children, especially those with Aspergers, about the various situations that could arise when transportation fails. These issues include schedule changes and a dependency on alternative transportation.

Behind the Wheel with Autism: A Personal Perspective

Having lived in several different cities, I can attest that it most certainly is not a regional thing: you’ll run into idiot drivers no matter where you live. It isn’t profound at all; many casual conversations begin with a gripe about traffic on the way to someplace or another, or end up there eventually. Driving is a serious source of stress for many, even under the best circumstances. And for people diagnosed with Autism, they are already functioning under decidedly less than the best of circumstances, and the idea of getting behind the wheel can cause anxiety.

I found that I did not have a great deal of difficulty behind the wheel. Having a nice, large, rarely-traveled stretch of land to practice on, and taking as many opportunities to practice, is the first thing I recommend for those who are diagnosed and want to drive. It certainly helped me. After enough practice, it became second-nature.

Contrary to the assumption that driving is the natural enemy of the Autistic because it demands multi-tasking, it really isn’t so difficult as all that. It has a nice and structured set of regulations, and your task is simple: start at one location, and control the vehicle in order to safely reach the next.

Anyone who has ever played a game, whether analog or digital, can tell you that while rules and setup are intimidating at first, once you see how it’s done and try it for yourself, it isn’t as hard as all that.

To the Autistic person who wants to learn to drive but feels rather intimidated, just think of it as a video game.

Seeking Help For Depression with Aspergers: The Specifics

If you have: lost interest in your usual activities; trouble sleeping, wake up early or sleep all the time; a change in appetite (more or less); withdrawn from people with a down mood (for Aspies it might be sad, irritable or a sense of hopelessness – whatever negative mood or thoughts you recognize), you have what we call major depression.

Depression, Aspergers, Help, Resources

For this, you probably need professional help. Things are not hopeless but being depressed is like looking through dark glasses. While people with Asperger’s are prone to depression because of challenging life experiences, clinical depression is not part of Asperger’s Syndrome and usually responds to treatment. For those struggling with lower level depression, you might still consider therapy to look at ways to make life changes and feel better.

Professional Help

For finding professional help and other resources, Autismsource.org is a gold mine of resources including lists of local therapists in your area.

Online directories:

Psychologists, social workers, psychiatrists, advanced practice registered nurses (APRN), and other specialties all can provide therapy. Individuals should be licensed providers in their states. You can find this information by looking at their websites.

Only psychiatrists, other MDs (medical doctors), and APRNs can provide medication. Medication has been demonstrated to be effective in treating depression. Often a combination of medication and therapy are most useful. The form of therapy most recommended is CBT (cognitive behavioral therapy). MBCT (mindfulness-based cognitive therapy) has been shown to be effective for depression although there isn’t research on it with people on the spectrum. Most therapists specializing in working with those with ASD know how to modify traditional CBT to best work with those on the spectrum.

It can be very challenging, certainly in parts of the US, to find therapists who take insurance.

The prevailing cost of therapy varies widely across the country. Some therapists (usually psychologists) offer sliding scale fees or have some lower fee slots, so it’s worth calling and asking. Clinics generally take insurance but you want to be sure that the therapist is familiar with ASD. The first thing you should do is call the number for patient or customer service on your insurance card and ask for a list of providers (psychologists/psychiatrists/social workers) in your area. This way you can know all the providers near you who are in network with your insurance plan before you call around clinics. In network providers have more affordable rates than out of network providers. It is important to inform yourself about your insurance plan and coverage before you begin the search.

Also, check providers with Medicaid if you have it. Any MD or APRN will know about treating depression with medication. Some therapists who accept Medicaid might be experienced with ASD even if they’re not on a directory for ASD.

Self Care Strategies

Three Necessities for the High Functioning Autistic to Combat Depression

If you are a High Functioning Autistic (HFA), the odds are troublingly high that you also suffer from some form of depression. As someone who suffers from depression myself, I’ve spent a great deal of time thinking about how to find happiness when you struggle with the burdens of having an autistic brain. One possibility for the prevalence of depression in autistic brains is that HFAs, for reasons distinct to their neurological condition, are innately more likely to feel depressed.

My sense, though, is that we tend to be depressed because life is difficult for us in ways that are somewhat different from the experiences of the Neurologically Typical (a satirical term for non-HFAs). As such, any discussion of why HFAs tend to be depressed must be approached as a social justice issue, with a clear statement of ethical axioms that, if followed, would help HFAs and non-HFAs alike.

Want to be a Friend to Someone with Asperger’s? Be Sure To do These Six Important Things

A Commentary by Reese Eskridge

Too often, neurotypicals expect a perfect useful relationship from a friend. They like friendships to be easygoing with as much similarity between two people as possible. Therefore, they hold higher expectations for the other side, even though the other side shares that same expectation. Due to the absence of fulfillment, neither person makes connections or sometimes people can become unreasonably selective in the friendship process. The reason for this is that both neurotypicals and aspies often feel like outcasts around certain groups of people.

friendship Aspie

If this happens too frequently, the inclination to make friends declines. However, this shared dilemma can actually help to foster the relationship between an aspie and a neurotypical or an aspie and another aspie, if they are willing to give a chance for that to happen. After all, few things feel more reassuring than being able to take up your worst fears and issues with others, knowing that they will not condemn you for them.

Tips for the Asperger Driver When Being Pulled Over by an Officer

AS101 Driving with Autism

For many with Autism a fear of driving stems from anxiety that can result from being pulled over by an officer of the law. In some cases, fear of just that very scenario is the reason many never pursue obtaining their driver’s license.

pull over, police officer

Good communication skills and actions are key to making an already stressful situation go without incident for anyone, but with the diagnosis of autism, Aspergers, or speech impediments misinterpretation is almost a certainty. Dr. Louise O’Donnell, who specializes in Clinical Child & Adolescent Psychology at UT Health Science Center in San Antonio Texas, offers suggestions to make a ‘pull-over’ go without incident.


Dr. Louise O’Donnell/UTHSC : Part 1

Things to remember when you are pulled over: